This week in a New York Times article, the debate continued over the cause and treatment of Autism. A family once united is now divided.
A year after their grandson Christian received a diagnosis of autism in 2004, Bob Wright, then chairman of NBC/Universal, and his wife, Suzanne, founded Autism Speaks, a mega-charity dedicated to curing the dreaded neurological disorder that affects one of every 150 children in America today.
The Wrights’ venture was also an effort to end the internecine warfare in the world of autism — where some are convinced that the disorder is genetic and best treated with intensive therapy, and others blame preservatives in vaccinations and swear by supplements and diet to cleanse the body of heavy metals. — read full article,
But for those of us who don’t know too much about autism…What is autism? What are the sypmptoms of autism?
I thought this was very interesting…
Johnson & Johnson Clears Their Own Product of Autism Link
(as you read keep in mind Big Tobacco’s claims of “no link to lung cancerâ€)
I am sure that if you have viewed a news source this week you have seen that mercury in vaccines has once again been cleared of any link to autism. Articles also state, “Shows over, nothing to see here, move along now… the grown ups need to talk.â€
This study was done in 2005. So why the big release two years later? Some have suggested that it is because the Vaccine Omnibus Hearings that will actually look at the link and make a decision as to the veracity of vaccine safety claimes will start next month.
Billions and Billions of dollars will be lost by corporations if a link is established.
So here is the story behind the story by an actual chemist who understands mercury, and the initial response from SafeMinds, who will be releasing a full review of the study later. — Read this full post at Adventures in Autism
More on this debate from David Kirby at the Huffington Post.
June 21st post - Autism in Room 5
Some witnesses for the U.S. Justice Department are expected to testify in Vaccine Court this week that there’s no such thing as an autism epidemic. They will say that autism is genetic in origin, and that its rate is generally static: about 1-in-150 children. A genetic disorder, of course, has no external “cause,†and nothing in the environment — least of all mercury in vaccines — could be driving autism numbers upward.
Better diagnosis and wider reporting, they say, are really to blame.
But there is a pivotal flaw to this argument: As a genetic disorder that seems to affect all races equally, autism rates should be roughly 1-in-150 in every age group, in every country, in every state, virtually in every town. But they are not.
Just ask the special ed teachers at St. Anthony’s school in Northvale, NJ: not about their students, but about their own kids.
So what does this have to do with vaccine court? Nothing directly, though it does provide evidence to refute the “all genetics, all the time†argument being offered up this week.
And, of course, if elevated mercury levels are detected in the air, soil or water around Room 5 at St. Anthony’s, this could be taken into account by local health officials as a genuine risk factor for autism and other disorders. (I will be following and reporting on this developing story closely),
“If mercury from the environment could potentially harm these kids, then what about mercury from other sources, like vaccines?†Dr. Rosen asked. “There is no reason to think that one form of mercury would cause this neurotoxic effect, but not another.â€
See many more posts from David Kirby at Huffington Post.
Immunization rates are rising in many developing countries, but so are the reported rates of autism. In Mexico, for instance, vaccine rates are now about 92%, UN figures show, while reported cases of autism are also moving upward (proof of nothing, but interesting and disturbing nonetheless).
Several well-placed sources have told me that the CDC and FDA will never agree to an outright ban on thimerosal in vaccines, due to pressure from the World Health Organization, and because the message this would send to developing nations would be untenable: “Yes, thimerosal might cause harm, but we are going to give it to you anyway, for your own good. Trust us. We’re Americans. We know what we’re doing.†-- read full post
More on the issue of vaccines on trial over link to autism - from NewScience.com
Theresa Cedillo of Yuma in Arizona puts a human face to the half-million or so American families living with autistic children. Her appearance in a Washington DC courtroom last week, alongside her severely autistic 12-year-old daughter Michelle, left no doubts about the heart-wrenching circumstances of their lives. Now Cedillo's lawyers are hoping to sow just enough doubt in the minds of judges to persuade them that, contrary to prevailing scientific opinion, Michelle's condition may have been triggered by her childhood vaccinations.
Nearly 5000 families have a stake in the trial, which opened on 11 June before the US Court of Federal Claims. Their goal is to gain access to a $2.5-billion government fund set aside to compensate people harmed by vaccination. But the families, aided by a small band of doctors and scientists, will only succeed if they can show it is more likely than not that the tiny amounts of mercury once present in childhood vaccines can cause autism.
My feelings on the issue of what causes autism. Even though I don’t know too much about autism, I do know a bit about how genetics plays a roll in a disease process. Scientist are now able to find genetic markers for many diseases, but simply having a marker does not mean you will get the disease. This is because, there is usually another “trigger†that needs to activate this genetic abnormality.
For example: Why doesn’t everyone who smokes get lung cancer?
It’s believed that a person may be pre-disposed to lung cancer and have cells that will mutate when (or if) they are exposed to environmental carcinogens such at cigarette smoke. This is why it is possible for some people to smoke their entire lives and never get lung cancer, and others who never smoked at all but lived or worked around a smoker could still develop the disease. It’s not just the smoking, but also the genetic disposition that is the true “cause†of the disease.
Other examples: Parkinson’s Disease, Psoriasis, Celiac Disease, and Rheumatoid Arthritis, just to name a few.
It’s my personal observation of the autism debate, that maybe both sides of the debate are correct. It seems to me that it is very likely that a genetic pre-disposition to autism plays a large part in this disease. However, like in many other diseases, there may very well be a “trigger†that causes this genetic abnormality to mutate, and it wouldn’t be that much of a stretch to believe this trigger could be a childhood vaccine.
In any case, as in most disease processes, there is usually more than one effective treatment, and many times an effective treatment for one person will not work for another. For this reason it seems to me that all avenues of treatment should be studied whether traditional or alternative, and maybe it will turn out that a combination of these treatments is most effective.
When it comes to our children, I would think that all aspects of causes and treatments should be extensively researched. And lets face it, the more a disease is researched the more outcomes there will be (but as with adult diseases, research doesn’t just stop, more research needs to be done to prove or disprove the previous research, and so on…this is how science works), for many reasons such as how the research was done, or who did the research, and many other factors can affect the outcomes.
I guess what I am saying is...Don't let the research or this debate, polarize the Autism Community, (keep the "unity" in your community). This shouldn’t just be about what side of the debate you are on, or who wins or loses the debate…if this is the case, the real losers of this debate will be the children.
Here is another BlogHer posts on autism...
Autism: The Parent's Perspective
Many BlogHers are blogging on their experiences with autism, here are a few of those blogs...
I would be very interested to hear what other BlogHers think about this important issue of autism. How have you been touched by this disease? How do you feel about the ongoing debate? And, if you are blogging on autism, I hope you will leave your link and comments.
Contributing Editor Catherine Morgan
also at Women 4 Hope and CatherineBlogs.com
Comments
no experience with autism
I have only cursory experience with the effects of autism, but, there is another point brought up in the 'triggers' quote. Many families are genetically predisposed to have AutoImmune disorders (such as rheumatoid arthritis)... and certain things 'trigger' the presentation of symptoms.
When I was 13, I caught a horrible cold and either it, or the medication given for it, triggered presentation of Myasthenia Gravis. My pregnancy nine years later 'triggered' a remission. A UTI the following year unmasked Hypothyroidism. ~shrug~ You never know.
Developmental milestones in our growth can also be triggers for such disorders.
It's theorized within our community that an anti-nerve-agent-drug given to gulf war troops 'unmasked' similar disorders in many of the troops.
~shrug~ It's worth checking out every possible avenue.
Thanks for the informative and thought-provoking post.
Melanie Perry
***not all who wander are lost***
Mistress of the Dorkness
From a mom of an autistic child
My eldest is high-functioning and a JOY! He is nine-years-old. He has a brother that has no autistic characteristics at all. In fact, his brother is quite the opposite; chatterbox, inquisitive (actually asks questions), super-hyper friendly.
I've researched this top to bottom, left to right. I've read medical journals, most every website containing the word autism that the search engines could find, notebooks, handbooks, manuals from the old and new schools of thought; from preservatives to glutens to genetics to research in Europe where measles were found in the intestines of autistic children who were only exposed to it through vaccines and on and on.
I’ve learned about families like mine that only have one autistic child to a family with all autistic children (three or more). Autism has a HUGE spectrum now that includes those that are unable to respond to those who are just quiet, studious or “geeks.â€
My observation on the subject: They haven’t found any ONE contributing factor to the rise in autistic children. I emphasis ONE because I also believe there isn’t just ONE factor.
As frustrating as this can be we are finding DIFFERENT solutions to treating the symptoms for DIFFERENT children. Just like autism may be “triggered†by a gene OR a series of genes, the ways we are finding relief or treatment for our children varies widely. From gluten-free diets, to sensory deprivation to early intervention (which I deem CRITICAL) we have to keep our minds open to more than just one cause and more than just one type of treatment.
I am for a broad array for studies on “like†genetic backgrounds and “like†spectrum disorders to determine if these can correlate. We need more studies from different and/or INDEPENDENT groups on environmental changes over the last decades in developed countries; studies on diet and links to genetic background; there is so much more to do and study to find the cause(s).
There are so many possibilities for the cause and so little time when you have a child growing up with autism. That is why I’m a strong advocate for early intervention when a child isn’t hitting milestones.
I do believe that there could be links to gluten as so many families have found successful results when removing gluten from the diet. It is difficult to do this because gluten is in so many foods. I have done a non-scientific analysis of my own son and I do see a difference when he eats less bread products and more fruit and vegetables but not enough of a difference to warrant a radical change in our daily diet. I’m sure if I KNEW it would make a major difference we would all change our diets immediately.
In my humble opinion, we have only scratched the surface of what could be going on with the increased autism in developed countries. I would STRONGLY disagree with those who state there isn’t an increase in the percentage or that it is being rightly diagnosed (they are in complete denial).
Something new is developing in the world of high-functioning autistics; a growing number of voices banding together who believe that autism is the “next step†in our evolution; because so many of the high-functioning autistics are genius in mathematics, science, language, etc. I am keeping my eyes and ears on this as well.
I’m keeping an open mind, staying involved and actively advocating for my son and other children in my community like him.
WE NEED MORE AND VARIED RESEARCH!!
www.thecanvasgrey.wordpress.com
Freedom of choice...we make it by doing something or doing nothing...it is YOUR CHOICE!
ing...it is YOUR CHOICE!
I agree...We need both more and varied
research on Autism.
Thanks for your comment, and the additional information you provided. I agree with you...we need both more and varied research on Autism.
Contributing Editor Catherine Morgan
also at Women 4 Hope and CatherineBlogs.com
By the way...
Thank you Ms. Morgan for bringing this subject matter to the minds of women that can make a difference!
www.thecanvasgrey.wordpress.com
Freedom of choice...we make it by doing something or doing nothing...it is YOUR CHOICE!